My project initially started with an educational intervention focus for adolescents with sickle cell disease, but evolved to incorporate health literacy and family centered care. Increasing health literacy has many benefits as it enhances a patients ability to make health care decisions and process basic health information. This is important for adolescents because they are faced with the challenge of transitioning to adult care and gaining autonomy in their health decisions. This project allowed me an in-depth look at adolescents who are faced with chronic disease.
The project was a fantastic experience and I wanted to outline some of the main rewards of my participation in the project.
Rewards:
- Working with patients and their families.
- Ability to attend traveling clinics and shadow specialists
- Improving professional skills in paper writing and presentations
- Exploring pediatric nursing as a career
- Gaining experience in development of educational materials
- Ability to incorporate academic learning in a community setting
- My community agency and mentor were fantastic.
- Many others!
Challenges:
- Adolescents as a population are sometimes difficult to work with. They were both a reward and a challenge in the implementation of my project.
- Time constraints. I was not able to attend as many clinics as I would have liked to. However, the experiences I had were incredible.
A last look for you is my current poster for dissemination. Thank you for following!
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